Cystic Fibrosis Center Personalized care from infancy through adulthood Located at The Saint Barnabas Ambulatory Care Center The Saint Barnabas Medical Center Cystic Fibrosis Center, located at The Saint Barnabas Ambulatory Care Center, provides personalized, comprehensive care including evaluation, diagnosis and treatment for our patients from infancy through adulthood. Our philosophy is one of optimism and aggressive management in a caring and supportive environment. With the availability of advanced medical therapies and diagnostic technology, cystic fibrosis patients are living longer and healthier lives. Our program provides specialized care for children and adults in one convenient location. For more than 20 years, our goal has been to ensure that at each stage of life our patients have access to comprehensive treatment and the latest research to help them maintain a healthy and active lifestyle. Accredited Cystic Fibrosis Center The Cystic Fibrosis Center is one of 115 centers nationwide to be fully accredited by the Cystic Fibrosis Foundation, a non-profit organization dedicated to funding research to find a cure for Cystic Fibrosis and improving the quality of life for people with the disease. Attending an accredited center ensures a quality of care. The Cystic Fibrosis Foundation has established care guidelines used by accredited centers and and provides regular updates regarding new research funding. Comprehensive Care Our dedicated team of professionals provides patients with the latest treatment options, compassionate care and thorough management of their health care needs. Our experienced, multidisciplinary team includes pediatric and adult pulmonologists and a cystic fibrosis nurse, social worker, dietician, two respiratory therapists and a research coordinator. You also will meet medical students, residents, fellows and other health care providers who are in training. To address the unique needs of our patients, our Center also has access to other pediatric and adult subspecialties, including: general and cardiothoracic surgery; radiology, gastroenterology; endocrinology; infectious disease; psychiatry/psychology; ear, nose, and throat; genetics and obstetrics and gynecology. Saint Barnabas routinely participates in ongoing, multi-center research studies and clinical trials designed to bring new understanding of the disease process, and test new treatment approaches. Patients may voluntarily choose to participate. Treatment Approach The Center provides state-of-the art care to monitor every aspect of the disease. Frequent assessment of lung function and nutritional status help facilitate earlier intervention and prevent small problems from becoming bigger. To help maintain the best quality of life, regular follow-up care is vital. In following the clinical practice guidelines recommended by the Cystic Fibrosis Foundation, every three months, patients at Saint Barnabas receive:
In addition, each year our patients receive:
Treatment for Adult Patients Because adult patients have their own unique issues, our health care team includes a pulmonologist who specializes in the care of adults with Cystic Fibrosis. Our team works closely to ensure our patients have an easy, gradual transition which meets their maturing medical and lifestyle needs. In fact, routine care and procedures continue to be performed at The Adult Cystic Fibrosis Center. This is good news as research shows that maintaining a continuity of care from a pediatric to an adult program helps produce better patient outcomes. For More Information The Cystic Fibrosis Center at Saint Barnabas Medical Center is part of The Division of Pediatric Pulmonology and is located within The Pediatric Specialty Center at the Saint Barnabas Ambulatory Care Center, 200 South Orange Avenue in Livingston (across from the Livingston Mall). For our patients’ convenience, free valet parking and child care is available. Please call 973-322-7600 for more information or to make an appointment or referral. [ top ] |
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